Our Story
Empowering Good Lives
How it all started
In 2021, a group of parents came together to discuss the lack of services and opportunities for their disabled children in Wairarapa. Some of us looked over the hill to Manawatu where a new national initiative, Enabling Good Lives, had been introduced.
This new initiative seemed like a solution. It was a person-centred, mana-enhancing system of disability support that valued self-determination and recognised the importance of maximising participation in mainstream activities and building relationships within the wider community. It recognised that disabled people should have the same life outcomes as ordinary, non-disabled people.
We asked how do we bring this initiative to Wairarapa? We were told that government supports for a national rollout were just around the corner, no wait, will be delayed a bit due to lack of funding, oh darn, actually not coming your way any time soon. But you are welcome to run with it yourselves.
So that’s what we are doing.
What We Do
We are a family network that provides peer support and advocacy for disabled people and their families:
- We offer a responsive platform for families to share emergent issues, concerns, and opportunities;
- We aim to build capability within families to support disabled people, both in negotiating the changing funding landscape and in developing a person-centred aspirational vision;
- We provide training for disabled people and their families to gain knowledge and advocacy skills to access the disability support they require
- We provide recreational opportunities for disabled people to connect with others, build confidence and establish relationships;
- We explore opportunities for social enterprises, community housing, coordination of support services;
- In all our work, we collaborate with other local and national disability organisations.
Enabling Good Lives
We are a group of disabled people and their families who support and advocate for the Wairarapa disability community. We endorse the principles of Enabling Good Lives:
- Self-determination – disabled people should have control over how they live their lives;
- Person-centred – supports need to be tailored to individual needs and aspirations;
- Mana enhancing – the abilities, knowledge and contribution of disabled people and their families are recognised;
- Relationship building – supports should help to build strong relationships between disabled people, their families, and the wider community;
- Mainstream first – disabled people are supported to access mainstream services, while recognising that specialist services still play an important role;
- Ordinary life outcomes – disabled people are supported to lead everyday lives, with the same opportunities for learning, employment, and social participation as all citizens;
- Beginning early – early investment in families will help them to build natural and community supports, build independence in their disabled children, and enable some really good lives.
Our Team
Board of Trustees:
- Anita Nicholls (chairperson)
- Marilyn Morrison (secretary)
- Chris Hollis (treasurer)
- Bruce Neal
- Alex Terris
- Amanda Cuff
Committee members:
- Shiree Chipp
- Pauline Hedley

Anita Nicholls (chairperson)
Anita is the parent of two adult sons with intellectual disability and lives in the Wairarapa. She is a Senior Academic Staff member at Open Polytechnic and leads the Social Health and Well Being Degree (Disability) and Graduate Diploma in Disability Sector Leadership.
Anita is also a member of Self-Directed Support Network Aotearoa and Australasian Society of Intellectual Disability, a peak body in intellectual disability research in Australia and Aotearoa New Zealand.
Anita strongly believes in empowering whānau and their support networks so they can best support their disabled family member to achieve a good life and have their voices heard.

Marilyn Morrison (secretary)
Marilyn is a parent of an adult daughter who has intellectual disabilities. She has struggled to find support and resources to enable her daughter to live her best life and she wants to be able to help other families to navigate the support and funding opportunities that are available.

Chris Hollis (treasurer)
Chris is the parent of two adults with fragile x syndrome, a genetic disorder that causes developmental delays, learning disability, autistic behaviours and social anxiety. He was chair of Fragile X New Zealand for over 10 years and has extensive experience in the disability sector.
Chris has a particular interest in climate resilience and sustainability. Because of this, he has been supporting people with disabilities to help out at the Carterton Community Garden and to develop a social enterprise based on organic waste collection and composting.

Bruce Neal
Bruce is the parent of an adult son with a learning disability. He has been closely involved with Special Olympics in the Hutt Valley and Wairarapa over many years and is current chair of Wairarapa Special Olympics.

Amanda Cuff
Amanda has lived in the Wairarapa for 22 years and comes from a busy Neurodiverse (or neuro funky 😊) household and works part time for Autism Wairarapa. She has generational links to disability, descending from a mother who was significantly blind and an uncle who experienced life from early years at Kimberley until its closure. Amanda is grateful to be aligned with FERNZ as a member of the Wairarapa Community Action Group and Good Lives Wairarapa advocating for equity and empowering good life outcomes for our disability community.

Alex Terris
Previously a resident of Wellington and now retired with his wife to Carterton, a grandfather and health advocate, Alex has a work history in facility management of large commercial multi story commercial buildings. The holder of a diploma in Recreation and Sport and cherishes volunteer work in Carterton as his way of contributing to a healthy community.